It has been about 4 weeks since the second feeding tube was
placed. I have officially gained 3 pounds! I really thought that the weight
would come on sooner and wouldn’t take this long. Apparently, it is going to
take the 3-4 months to gain all this weight back!
Things are going well. I overall feel pretty good. Unfortunately,
the pain in my right side is back. However, this is something I am going to
have to learn to live with because at this point, I don’t think I could
mentally or emotionally handle having surgery again. I am able to eat a lot
more during the day. On a good food day, I can consume about 900-1000 calories!
I am still incredibly sore and can’t
handle sitting down for too long. My abdomen feels better when I am up and
moving around or lying flat on my back. I still am on weight lifting
restrictions so I feel pretty helpless around the house and have to rely on
others to lift things for me.
I still have days where I feel super sick to my stomach and
feel like I can’t pull myself out of bed. There are still days where my pain is
a 6 or 7. There are days when I become super annoyed that I have to hook myself
up to a bag for nutrition and that it has to run for 10-12 hours. I get upset
when I add up how much money I have spent on medical/doctor bills but am thankful
that I have health insurance and a job that allows me to pay them. I hope that
I can go on a vacation when all of this is over and spend my money on something
fun! But I push through all of this and keep living my life. I try and not let these circumstances control
my life but I try to control them and the symptoms. I am still alive and try to
remember that this is just a blurp on my life map and not a terminal illness. I
am thankful every day that I have Doctors that care about me and so many
friends and family that give me strength to keep fighting and to keep living!
I see Dr. Rasmussen in two weeks and Dr. Frech in 4 weeks
and am confident that things will continue to move in the right direction!
Your optimism is wonderful. You are an inspiration!
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