Dr. Frech called me to let me know that things aren't really OK anymore. He said my liver enzymes are elevated, which could be an indication of liver failure/disease/damage. But he also said they could be elevated due to the massive amount of weight loss I have experienced in such a short amount of time. He stated that he is very concerned and can no longer sit back and just hope that things get better. He says we are no longer moving forward with my case, which I absolutely agree with. He also doesn't want me to think that my liver is failing or this is some massive problem YET! He has come up with a new plan.
- I am to have weekly labs drawn to check the elevated liver enzymes. He wants to make sure that the numbers don't get any worse.
- I have to meet with his nutritionist and then he is ordering the re-inserting of the feeding tube. He said the only way to stabilize the elevated liver enzymes is to stabilize my weight (if they are elevated due to weight loss). It is not that I don't or can't eat now, the issue is I cannot physically consume the amount of calories I need in a day to stop losing weight.
- Also, based off the results of the repeated liver labs from this week, he will decide on whether to order an MRI and/or liver biopsy to see the extent of the damage.
- I am to see him in 3-4 weeks after the feeding tube is placed.
Even with all this going on, I am so grateful for the many amazing friends and family members I have that offer so many words of encouragement. There are days where all I feel I do is cry but there is always someone there to tell me that it is going to be OK. I wouldn't be able to handle all of this if it weren't for these people!
Next step..FEEDING TUBE HELL!!
Fascinating and frustrating. What a bumpy adventure!! You can do it!
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