I have received so many phone calls and text
messages the last couple of weeks from people asking how I have been doing, so
I wanted to give an update. It’s obviously been a while!
Life is so good right now. My health finally feels
like it is stable and nothing too dramatic seems to be going on. My weight has
also been stable. This makes me very happy…because as much as I love my Drs., I
am OK if I don’t see them at their offices for a while!
Of course, each day definitely brings its challenges
but it is learning to live with those challenges and make the best of it. I am
just maintaining all of my medicine and staying on top of symptoms. I take all
my daily meds and am still doing the monthly B-12 injections. I have been
continuing to work out at the gym and run and that has helped a lot. Being sore
makes me feel alive again! I get pretty bad muscle cramps in my legs, which makes
me concerned about my potassium levels. When this happens, I just make sure to increase
my water intake and add Gatorade into the mix as well. Also, some exciting news...I
have tried red meat a couple of times over the last 3 months!! It didn’t make
me too sick, although I could tell that my body had a harder time digesting it.
Eating red meat is a habit that I am not going to get back into. Some days I
feel like I can eat more and other days I don’t eat much. I still try to do a
daily protein shake and protein bar to make sure I stay on top of my protein
levels. I also try to eat a lot of bananas to keep on top of my potassium
levels. Potassium infusions are no fun! I eat a lot of chocolate and I am trying to cut
that habit as well. I still throw-up on a regular basis, but it’s something
that doesn’t bother me anymore. It’s one of those things I have accepted and
just deal with. I get pretty intense and painful hiccups if I eat too fast, eat
something wrong, or lay down too soon after eating. These are about the only
things that are going on. But once again, I don’t think these things will ever
change. I just make the best of it and try to not let it control my life!
I have follow up appointments with both Drs. Scheduled
for May. At these appointments we will do a full check-up and check all the lab
levels. I haven’t been to the Dr since December and am very proud of myself! Hopefully
things continue on this upward trend!
Thank you to those who continue to follow this crazy
health saga I have lived. It is because of your continued love and support that
I am a strong person. This has been the hardest thing that I have gone through
in my life. It is something that has forever changed and shaped my life. But it
is because of the support of so many people and the love of my family, friends,
and more importantly my Heavenly Father that I am even here today! I wouldn’t trade
this experience for anything in the world!
